Founded in 2020 as Upequity and reborn as RareRising, we are a 501(c)(3) nonprofit built on a simple belief: the people closest to rare disease are the ones best equipped to change it — they just deserve real support.
We deliver patient-centered research, incubate emerging rare disease organizations, and explore novel solutions that make life tangibly better for rare disease communities. We work to eliminate barriers to diagnosis, access, treatment, and care — and to pave the way for the nonprofits advocating for their communities every single day.
We believe… our different lived experiences and perspectives are essential ingredients to building something strong.
We prioritize… the communities and leaders that too often go unseen.
We succeed by… solving problems together and cheering each other across every finish line.
Our Pledge: To impact health equity by collaborating with families and organizations dedicated to serving underserved communities and supporting leaders from underrepresented groups.
Our Values: Servant Leadership · Authenticity · Innovation · Results · Honesty & Integrity · Inclusion

Do you want to end each day knowing you are you exactly where you need? We look forward to exploring the possibilities of whether RareRising is that place!
We’re seeking talented individuals to join our team and help us achieve our goals.
What we offer:
Open positions:
We look forward to connecting!