RareInc
Mentoring and connecting rising nonprofits in rare disease!
The Need
Patient advocacy organizations (PAOs) are indispensable partners in advancing rare disease research, development, and care. These dedicated groups play a pivotal role in advocating for patients, from early diagnosis to accessing life-changing treatments. As the landscape of rare disease evolves, PAOs are increasingly essential to driving progress in areas such as clinical trial design, regulatory alignment, and patient engagement.
However, many PAOs face significant challenges in building and sustaining their organizations. Limited resources, limited expertise, and limited support often hinder their ability to effectively collaborate with industry, academia, and healthcare providers. Emerging PAOs may struggle with foundational tasks like establishing a community network, recruiting volunteers, and securing funding. Even well-established organizations can encounter obstacles as they scale operations to meet the growing needs of their patient population.
RareInc is uniquely positioned to support PAOs in overcoming these challenges. Our deep experience enables us to provide the guidance, tools, and resources necessary to help patient organizations thrive and maximize their impact. By working collaboratively, we can accelerate progress in rare diseases and improve the lives of patients worldwide.
By partnering with RareInc, nonprofits can expect:
- Increased efficiency and effectiveness
- Stronger organizational capacity
- Expanded reach and impact
- Improved ability to navigate the complex healthcare landscape
How We Work
RareInc empowers rare disease nonprofits to achieve sustainable impact. We offer a comprehensive mentorship program designed to strengthen organizational capacity and drive long-term success. Leveraging our deep industry knowledge, extensive network, and proven methodologies, we provide nonprofits with the tools, resources, and guidance needed to overcome challenges and optimize their operations.
Our program focuses on coaching and connecting nonprofit leaders with experienced mentors who offer personalized support, strategic advice, and accountability. Participants gain access to a confidential space to explore challenges, develop solutions, and build essential skills. Through one-on-one mentorship, networking opportunities, and limited seed grants, we help nonprofits accelerate their growth and maximize their impact on the patient community.
RareInc supports nonprofits at all stages of development. Our incubator program nurtures emerging organizations, while our accelerator track provides targeted support for nonprofits experiencing rapid growth. Mentors bring a wealth of expertise in rare disease, nonprofit management, and strategic partnerships, ensuring that our participants receive the highest quality guidance.
*New participant nonprofits are accepted throughout the year as capacity allows.
Examples of RareInc Assistance
If you are interested in participating in our RareInc program, please click below.
