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RareLift

"A rising tide lifts all boats" - JFK

The Purpose of RareLift

We’re here to help with the lift! By offering a host platform with operational expertise, support and fiscal sponsorship for aligned coalitions and alliances, we serve as a bridge for emerging and temporary rare disease groups aiming to make a significant and lasting impact. Our expertise facilitates rapid results. Temporary coalitions achieve their goals without the additional operational burden of launching a new nonprofit. Ongoing coalitions can promptly begin working toward their goals while they determine and form their long-term organizational structures.

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Our Work

We are currently hosting three coalitions:
WI Rare

A coalition bringing together patients, caregivers, medical providers, researchers, industry, and other stakeholders as a collective to advance Rare Disease in Wisconsin.

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A grassroots movement to champion and advance the equitable access to diagnosis, care, and treatment for women, girls, and those assigned female at birth with bleeding disorders.

Bleeding Edge Logo

A bleeding disorders group focused on providing novel experiences and pushing past lifetimes of limits for aging adults living with bleeding disorders in the US and territories.

If interested in supporting this work, please contact us for more information.

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