Upequity exists to challenge the status quo and advance change that help families with rare and serious diseases live their healthiest, best lives. We prioritize research, projects and programs that are focused on underrepresented and underserved populations.

We have 3 key areas of work:

1. Conduct research and experiment with new, novel ideas for positive impact
2. Mentor and connect emerging and growing nonprofits
3. Host rare disease alliances focused on underserved communities

We have considered many ideas and have come down to 3 options:

Rare Unite

Unite meaning: To join or combine. Incorporate so as to form a single whole.

Rare Rising / Rising Rare

Rising meaning:  Advancing, ascending. Moving or going or growing upward.

Rare Genesis

Genesis meaning: Beginning. The start. The beginning of a movement or an idea.

Please take a moment and vote for your favorite option for our future name below!